World AIDS Day - And The Beat Goes On

This is my post from last year on World AIDS day with a few changes. This will be the 20th World AIDS day, come Dec 1 2007. It seems fitting to deja vu a post on AIDS as more things seem to stay the same. As long as we moralize the disease and monetize the cure and treatment, this will never end. The only thing that might save us is if people of faith start acting like their Gods, rather than playing them.

December 1st is World AIDS day. As a Gen X'er I have pretty much grown up under the specter of this disease. No free love, or swinging, or love the one your with (or whoever keys you fish out of the bowl) for my peers and myself. I remember hearing about AIDS for the first time as "GRID." Dan Rather looked somber and they had one of the medical charts that shows a heart rate. The tie in on that was always a bit hazy for me, since the end all, be all, do all result of this disease seemed to be NO heart beat. I remember the gay bashing and the bigotry that came with it. I remember the hysteria over things like drinking fountains.

I remember Ryan White, I remember Rock Hudson, I remember Bobby Campbell. I remember the sick feeling I had watching people protesting with signs saying they were "dying of red tape." I remember being very proud of the people in Act Up for the Wall Street demonstrations. I remember a rather unpleasant dinner conversation with an uncle who worked for Burroughs Welcome.

And I remember the faces of the people I took care of who were dying of AIDS.

From 1989-1991 I worked in an inner city hospital on the medical floor as a CNA. The hospital was located in a trendy area popular with Gen X'ers, artists, young families with children looking for a more urban lifestyle, and the gay and lesbian community. It also had a large housebound geriatric population and a growing homeless population. I was 20 when I started working there. You could say it had a profound affect on me.

In 17 months, I saw faces from each of these groups die of AIDS. The drag queens, the artists, the elderly, and the children were all represented. I remember the grandmother who beat cancer but died a year later at 83 from the blood transfusions she received. I remember the street people who died. At times, we didn't even know their real names. I remember the hemophiliac kids who were still fighting the disease when I left. I remember the street kids - teenagers- and their combative attitudes when given their diagnosis. It seemed impossible to them that they were 16 and would probably die before they reached legal drinking age. Can you blame them?

I remember Tony, who's family would have nothing to do with him. In their minds, AIDS was gods punishments for gays. Tony was a sweetheart. He was a stylist. His last words to me were some heartfelt advice on my hair and it's complete lack of style. Had he been able to give me the "do" he had in mind, I am sure I would have conquered the world. We were the same age. He was 22 when he died. **Update - Kidlet just found me a picture of his quilt in the Names Project online. It has been nearly 20 years since he died and not enough has changed. But the numbers keep going up, and the tears keep falling, don't they?

I remember Ollie and his love of Haagen Daz blueberry and cream swirl ice cream. I remember his love of papaya. I remember nearly falling over when he came back to visit us before his final relapse. He was back from Hawaii with papayas in hand. He was gorgeous. The last time I saw him he weighed a bit over 90 pounds while standing over 6 feet tall. I could carry him like I did my daughter. When she was two.

I remember Robert and the amazing bead work he did despite the fact that AIDS left him blind. He made the most intricate Indian moccasins. I remember walking in the AIDS walk the year he died. It was dedicated to his memory.

Most of all I remember Neal. And his cigarettes and how he nearly burned his bed down trying to smoke one. I remember the bags of Hershey's kisses he'd have his SO bring me every time I was scheduled to work. I remember his love of clear high heel pumps with the goldfish in the heels. That man could make me laugh like no one else. I miss you, Neal.

I remember the 20+ funerals I attended. I remember holding the hands of men with no families present. I remember both comforting and being comforted by life partners when death finally came. I remember the kind woman who was volunteering at the Names Project who was there with a hug and a box of tissues when I found the quilts of three of my patients and burst into tears looking at the ordinary reminders of lives that were gone and people who were no more.

I remember when the AIDS death total finally exceeded that of the Vietnam War. Over 58,000 dead from the virus. That was then.

Today, AIDS has killed over 25 million people and there are over 33 million living with it. In developing nations people are dying for lack of medicines that cost less than the average candy bar. TWIX or death?

Our politicians are only as good as we make them be. Hold them accountable. If enough people stand up and demand they do something about AIDS and all the stupid poverty related deaths that could be avoided, they will. Remind them that it's not about charity, it's about justice.

The changes we need may not happen tomorrow, or next month, or next year. But if we keep making noise, they will happen, and maybe today's kids will not have to live in a world where a child dies every three seconds from AIDS and poverty. Make noise for these people. Make noise for my kid and her friends. Make noise for your kids or the children in your family.

Please visit One.org and sign the declaration.

HIV: Key Facts and Dates

1981 First documented case of AIDS (then referred to as GRID)
1982 AIDS first used as a term and is detected on five continents
1985 Rock Hudson first public figure to be known to have died of AIDS
1986 Needle exchanges first piloted in the UK
1987 Don’t Die of Ignorance campaign
1987 Photographs of Princess Diana holding the hand of an AIDS patient broadcast around the world
1987 First form of anti-retro viral treatment available (AZT) in the US
1987 National AIDS Trust founded
1987 First successful form of HIV ‘anti-body’ tests widely available in the UK
1988 First World AIDS Day held
1989 First HIV awareness materials targeted at gay men produced by Health Education Authority
1990 Mark Fowler diagnosed HIV positive on Eastenders
1991 Half of the 500,000 people living with HIV in the West had died
1991 Freddie Mercury died
1991 Red ribbon becomes the international symbol of HIV
1991 Princess Diana becomes patron of the National AIDS Trust
1991 Number of people infected with HIV worldwide reaches 10 million
1995 The film Philadelphia screened
1995 First combination therapy treatment available in the US dramatically improving the life chances of people living with HIV
1996 UNAIDS established
1999 90% of all people living with HIV are in the developing world
2001 Pharmaceutical companies abandon court case against South Africa’s Treatment Access Campaign, allowing generic production of anti-retrovirals for the first time
2002 Global Fund to fight AIDS, TB and Malaria set up to increase funding to fight the world’s biggest killer diseases. As of 2007 Only 28% of people with AIDS in developing countries are getting the medicines they need

Today 33.2 million people with AIDS worldwide. 25 million have died. There are 12 million AIDS orphans.

After 20 months, (RED) Products have funnelled over 50 million dollars into the Global Fund. Shop Smart. Shop RED Smart.